Well, it’s 100% official…I DO HAVE CELIAC DISEASE. I had the genetic testing done to confirm I really do have this disease…this is the only way to know for certain that you have Celiac.  I had the first testing done in October and the lab lost…they said it was misplaced and I’m not sure what the difference is…some of the blood information so I went back and had them repeat it. Then last week I get a call and they told me I did NOT have Celiac but to repeat the process in five years. It seems the new blood work had me in the normal range since I had eaten zero gluten for over six weeks…they failed to look at the original testing I had done in September and yes, the gluten free diet was working. We scheduled a conference with the doctor for this morning because I wanted him to say that I had , or did not have,  Celiac since he would have all the information before him…I was hanging on to the tiny thread of hope that the first test was wrong, but it was accurate. The emotions kicked in again today as I have NO hope of ever being without this disease. I know it could be much worse, but this is a very difficult diet as so many things have gluten in them or the foods are cross contaminated with gluten. I’ll get over yet another pity party before today is over, but I needed to cry and let out my disappointment. Now I’ll set up time with both a support group and a dietitian, hopefully before we leave for Florida, but with the holidays here I’m not sure that’s going to work out. Oh well, I’ll get to them when we get home in February.
Just nine more days until we head to the sunshine state and I’m ready for the warmer days. We’re having sunshine today, but it’s sure not warm…currently 26 degrees. We haven’t had any real snow yet and I’m praying we won’t. I’m sure there will be snow in both February and March, so we’ll see more than we ever wanted once we get back home.
We’re staying busy, as more everyone is this time of the year, and enjoying the pure joy and magic that comes only through the eyes of children. Oh, if we grown ups could only get some of that joy back in our lives! Have a good “hump day” and may the rest of the week get even better for you. We have two parties to attend this week and I pray I’ll have a good attitude about all the goodies being enjoyed by the others and not remain in a constant pity party mind set. It really could be much worse!!!
Blessings…….